Connect, Learn & Stay Informed
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Stay Informed
We invite you to follow us on Instagram for frequent updates on TRIM8 syndrome treatments, research, and other useful information for patients and their families.
Virtual Conferences
We organize video conferences on issues related to the treatment and management of TRIM8 syndrome for patients, their families and interested researchers and therapists. Subscribe to our newsletter to receive notices of upcoming chats and/or videoconferences.
Quarterly Community Coffee Chats
Starting in fall 2026, we will be holding quarterly virtual coffee chats for patients and their family to discuss their experiences and connect in a warm and supportive environment.
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Receive TRIM8 research updates, community news, helpful resources, and invitations to upcoming virtual events.
Our Objectives
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To collect and make available information on TRIM8 syndrome
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To facilitate communication regarding effective therapies for TRIM8 syndrome patients
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To facilitate research related to genetic and clinical aspects of TRIM8 syndrome
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To advocate for the development of an effective treatment protocol by physicians for the genetic form of nephrotic syndrome associated with TRIM8 syndrome